phinnia: dolphins leaping out of the box from 4.1 "Alone" (house/dolphinbox wilson)
dear internet,

today was an awesome day. in the mail i got a package from [livejournal.com profile] cindy_lou_who8 and cards from [livejournal.com profile] mirrormargaret and [livejournal.com profile] patterns_rhyme, and no bills.

oh, and

my wheelchair is actually ready and i will hopefully be fitted for it monday afternoon.

love,
phin
phinnia: smiling dolphin face (house/wilson-antidepressants)
Neuro/psych appointment took over four hours. Nearly two hours of paperwork, an hour and change seeing the actual doctor and the rest for blood testing. Five vials of blood + a urine sample; I go back in ten days for two hours of more paperwork (this time on computer) and to be fitted for an ambulatory EEG which takes place over the weekend.

...

wow.

He's tapering me off the paxil (among other things it's also interfering with my absorption of pain medication. good times) which I should be off of around Christmas. Replacing that with a lower dose of celexa and eventually something called buspar that I'm not familiar with. The rest will be discussed after the blood test/EEG results are in.

Brainmeats scorecard: severe atypical depression, moderate generalized anxiety, moderate social anxiety, obsessive rumination (no compulsion), profound insomnia, severe fatigue. Really nothing I didn't know except that the depression is worse than I thought, but that's why it's atypical I suppose.

All in all a satisfying day.
phinnia: smiling dolphin face (house/wilson-antidepressants)
OMG. I am complicated enough for the psychiatrist/neurologist! He had a cancellation next week! MAYBE SOMEONE WILL ACTUALLY FIX MY MEDS!
phinnia: smiling dolphin face (warthog faced buffoon)
Dear Twits on the Phones at Outpatient Psychiatry:

If you cannot see the referral, then one of two things happened: either they lost it or you did. Considering your response when I asked you about this referral was, and I quote: 'are you sure that he sent the referral to our clinic? i have his name here, he's sent referrals to *iterates over six other clinics*. are you sure he sent the referral to our clinic? this is outpatient psychiatry.' I am betting that YOU lost the referral.

I am perfectly aware of what department I am calling, and my doctor is a BIG BOY who can WRITE HIS NAME NOW, EVEN ON REFERRAL SLIPS TO LOTS AND LOTS OF CLNICS. JUST BECAUSE HE HAS WROTE THOSE REFERRALS DOES NOT MEAN HE DID NOT WRITE MINE. IN FACT, I DO NOT KNOW WHAT IT DOES MEAN, EXCEPT THAT YOU ARE AN IDIOT.

I am half ready to call INPATIENT PSYCHIATRY just to get this DEALT WITH IN A TIMELY FASHION if y'all don't GET ON THE BALL.

L.

ow

Aug. 13th, 2008 10:29 pm
phinnia: asian person demonstrating proper use of facemask (birdflu)
i has had doctor. i has had shot of phenergen. i will sleep soon. fuck my head hurts. night everybody.
phinnia: asian person demonstrating proper use of facemask (birdflu)
Crows stealing money from car washes.

Seriously, awesome. Crows are neat.

Random other bits from the afternoon:

Got hold of the ankle surgeon's people. The ankle surgeon is booking into JANUARY for consults. I have an appointment with the ankle surgeon to discuss tendon release. Also have rebooked appointment with spinal-surgery person at the pain clinic, for mid-September. (Just discussing the surgery at this point. Not actually getting implants installed yet. There'll probably be a trial, and - yeah. Hurry up and wait.)

At a rate of (when possible) no more than two appointments per week, I am booking myself into early/mid-October now. That said I think I only need to make one more appointment (rheumatology) and that will happen tomorrow. Awesome.

Current job: professional patient/fiction writer, apparently.

Have epic headache of epicness. lying down now.
phinnia: smiling dolphin face (deathwings)
Number of referrals I asked the Stoned Nurse in rehab for: two.
Number she has managed to screw up? two.

Called the ankle/foot surgeon to check on my referral. Apparently The Stoned Nurse put that I had 'knee pain' (which I do, but the ankle pain is FAR worse and that IS in my file) and so it got kicked back as being not this guy's specialty. I fucking swear I will never find an orthopedic surgeon. Bleedthrough pain on ankle is sadly normal now, which makes me wonder how it would be without the freaking methadone. I can barely walk on it for more than two or three feet. Left hamstring hates me on general principles. *grumble* Seeing doctor on Thursday. Am going to beg for more methadone and hope they don't think I'm a drug-seeking junkie.

Called physical therapy. Still can't find my physical therapist. Hate their new receptionist; she is wonderfully unhelpful. No one is returning my calls. RAGE.

Tripped in living room, bruised tip of right patella on floor. May have screwed up left hip in attempt to get up. Took me ten minutes to walk to the end of the block. Have stuff to do and can't bloody focus. Do not want to supplement methadone with tylenol 3's or percocet, but may well have to.

ANGRY PHINNIA IS ANGRY.
phinnia: smiling dolphin face (house/mouse-hugh)
Attempting to find (a) person to do the spinal pump surgery and (2) an orthopedic surgeon to look at my ankle and determine if it needs surgery also. Apparently it is easier to find a duck-billed platypus burger on rye bread. I have left what is, frankly, a ridiculous number of messages, and I am scarcely further ahead than I am now.

In conclusion: AUGH.
phinnia: smiling dolphin face (black eyed angels)
I am sick of
the following - cut for angry bitching. )

I will stim on Radiohead now.
phinnia: writing a rumi quote on a desk (rumi/heart is a pen in your hand)
Boring appointment with pain management guy. He approves of the new treatment regimen (lidoderm patches as needed + diclofenac (a popular European NSAID, one does feel on the cutting edge) 2x daily) and wants me to see Primary Care Guy so I can take something for the damage which will inevitably be caused to my stomach by the pain medication. Plus I have to get blood work done every few months to make sure the whole bloody lot of this isn't slowly killing me. Look! An Outbreak of Medical Care! Awesome!

He wants to see me in two months - after I see the rehab guy, who I'm seeing next week - and approves of the spinal surgery thing or something similar. So we'll see what Rehab Guy says next week.

Whole Foods: Still full of Pretentious Nannies and Mommies, still overpriced, but they have a more reliable supply of glutenfree bread than TJ's does.

Am happy recipient of package! From [livejournal.com profile] tsuki_no_bara, who is made of win and awesome. (Seaners totally approves of the CDs, by the way, and so do I. He is Rocking Out in a very serious way (there is much jumping, bouncing, laughing and stimming.) Haven't tried the cookies yet, am hiding them from kid until after his bedtime: they have wheat in them, which is fine, more for me! THANK YOU SO MUCH, honey.)

Think kid may also have dairy sensitivity as well as gluten problem (and indeed think that dairy sensitivity may be worse than gluten problem). Totally forgot that he had to be on soy formula as wee baby because of dairy sensitivity then. Feel vaguely like lousy mother because of this. *laugh*

Apartment: disgusting disaster due to child being home on weekend. Hate cleaning, yes precious. Ankle feels like pain and death: can't put another patch on it for a while (they have to be 12 hours on, 12 hours off) so I'm just resting it.

Am trying to get good picture of cat playing with packing peanuts. No success as yet. Have several pictures of cat's butt though. Cat is obviously typical cat in that respect.
phinnia: asian person demonstrating proper use of facemask (birdflu)
Orthodist = hunky as usual. *swoon* He's fixing my orthodic (basically putting a hinge in the ankle part) and frankensteining my shoes that I bought to wear with it (built up sole on the right foot, 'cause my right leg is shorter; toe caps on both feet so they'll slide and not drag/catch and wear down when I walk with 'em.). I have my sandals back, just in time for the weather to turn nice. I'm going back on Friday to pick everything up.

(It's 55F here right now and gorgeous. You wish you were here, you know it.)

Clickies:

I know far too many people with chronic pain conditions. (And I mean that in the "it sucks that so many people have them, including myself and one of my loves, goddamnit." way.) How chronic pain throws your cortex out of sync.

Space kimchi!

I have whined to the nurse about my lack of non-narcotic pain meds. She's calling me back. But first, lunch.

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phinnia

January 2013

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