phinnia: smiling dolphin face (boy in box)
phinnia ([personal profile] phinnia) wrote2006-10-16 03:07 pm

abuse of italics inside

Is Dance Dance Dance meant to be a sequel to A Wild Sheep Chase, or am I just confused in drawing parallels between them?


Meeting with the SLP next Monday (10/23.) Am going to suggest increasing speech therapy in his IEP (the OT was willing to sign off on increasing her service, so I figure it might be worth a shot.) I'm also giving a thought to private speech therapy in supplement to what he gets at preschool.

The way I see it, the lack of language is a much bigger problem - and it's difficult to address, because most ways of dealing with nonverbal kids involve pictures, and ... yeah.

I've got a call in to Children's Speech/Language services. We'll see what they say.


Where is the line between advocacy and being an ass? If I push for my kid to have more therapy, this may mean that some other child gets less therapy (inasmuch as there are only x hours in a given day). But I can't just sit around, not knowing what's causing this language delay - and half an hour a week or however much they have him in one on one therapy seems like so little and it feels like it makes no difference, and ARGH. *flails hands incoherently* I am not good with the sense-making today, I think. Did not sleep well. Woke up at 4:00AM because the boy had a nightmare and my hands were cold and stiff enough to be immobile. Ergh.

I think it would be easier if I just knew why, you know? It's not genetic - Chris was talking early, and I had normal language development. What the hell? But whenever I ask, it seems to get shrugged off, and it's really starting to piss me off. Why are we not trying to find the cause of this again? WTF.
</whine>


Child likes to lie on the floor, listening to music, sometimes rocking a little bit. It's a thing he does.
Neko: Oooh! I will play with The Small One! *bats at Sean's hair*
Sean: *shoves cat away*
Neko: A game! A game! *plays with Sean's hair*
Sean: *shoves cat away*
Lather/rinse/repeat. At least as long as the cat's attention span, anyway.


Is it just me, or is there something terribly wrong with the whole idea of this product? (probably not worksafe.)

[identity profile] irismoonlight.livejournal.com 2006-10-16 10:51 pm (UTC)(link)
*sigh* I think alum has been used as a "virginizing" product for many many generations. Um, not recommending it, never tried it; there are some things I am *so* not interested in ... interring. *bwhwhwhwha* Oh dear.

[livejournal.com profile] misia's knowledge base on the subject would be more solid. But, in answer to your question? Oh yeah.

This will probably make you good and mad.

[identity profile] wordweaverlynn.livejournal.com 2006-10-16 11:01 pm (UTC)(link)
Chris was talking early, and I had normal language development. What the hell? But whenever I ask, it seems to get shrugged off, and it's really starting to piss me off. Why are we not trying to find the cause of this again? WTF.

Because he's blind.

It's something I've seen elsewhere; I've had friends whose children had multiple disabilities. But a lot of times, there's an unconscious bias that there's no point to trying to work on (for example) language abilities for blind kinds, or academic problems for deaf kids, or almost anything for severely autistic kids.

Keep fighting for your son. He deserves the best.

Re: This will probably make you good and mad.

[identity profile] phinnia.livejournal.com 2006-10-16 11:12 pm (UTC)(link)
*laughs dryly*
I know. And it makes me sick inside.
A little story in that vein - this was told to me by Sean's first vision therapist. She taught a little boy who was having a lot of problems learning braille - he got a lot of letters mixed up, particularly W and R (if you don't know braille; W is dot 2, 4 5 and 6; R is dots 1, 2, 3 and 5 - they're basically the inverse of each other). He had a family history of dyslexia, including at least one sibling with dyslexia. But the school district did nothing, over and over again, because how could he have dyslexia - he's blind. They tested him for dyslexia using transcriptions of the standard tests - which of course did nothing, because he didn't get b (dots 1 and 2) mixed up with d (dots 1, 4 and 5 - they look nothing alike).
Eventually he was able to get someone with a clue and get the help he needed. But people were so stupid about the whole thing, and it DOES make me good and mad. I bet you're right, that is what's happening here.
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[identity profile] hobbitblue.livejournal.com 2006-10-16 11:44 pm (UTC)(link)
I know Sean likes music, does he tend to keep hold of lyrics or rhyming words - I learn languages best by repeating key phrases or via poetry or songs, my brain learns to pattern match that way, if he could get the hang of repeating nursery rhymes or something it might be a way in?

[identity profile] phinnia.livejournal.com 2006-10-17 07:19 pm (UTC)(link)
We try songs with actions (he's a big fan of the head-shoulders-knees-toes song) and signing; he seems to be more attatched to the tunes of a song than the words (which makes me think he's probably got some kind of inherent musical talent; I'm sure he'd love your instrument collection).
(That reminds me. You wanted me to look at something next time I went to Lark in the Morning - I'm going down there next week to see about the kiddo's birthday gift, but I don't remember what it was you wanted me to look at. Refresh my memory, please? :-))
ext_4917: (Default)

[identity profile] hobbitblue.livejournal.com 2006-10-17 09:45 pm (UTC)(link)
I'm sure he'd love it, all those noisy things... what are you planning to get him if I can be nosy? What I wanted you to look at? Oh yes, the nature chime things, the boxes you turn over and ballbearings make random ringing noises - this one and then this other one, just want to know if they are delightful and soothing kind of like windchimes or just really naff and annoying and tinny...

[identity profile] phinnia.livejournal.com 2006-10-17 09:52 pm (UTC)(link)
*makes note of them* Yay. :-) Will do.
I'm at least planning on getting him a harmonica (he's taken a liking to my tin whistle but he hasn't quite figured out how to blow softly enough to get a nice note; I figured a harmonica would be a little easier, plus no holes to cover), and I'm going to look at the little pianos (like this one (http://larkinthemorning.com/product.asp_Q_pn_E_KID042_A_Children%27s+Piano_E_) - it's small, but a good thing for him to start with if the tuning is good) and maybe these boomwhackers (http://larkinthemorning.com/product.asp_Q_pn_E_PER312_A_Boomwhackers_E_) (they sound neat but I want to make sure they're actually as neat as they sound.)
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[identity profile] hobbitblue.livejournal.com 2006-10-18 01:16 am (UTC)(link)
Love the piano, harmonica is a cool idea too, not sure on the boomwhackers, have you seen the drumsticks with pre-recorded sounds you can get, rhythmsticks or something I think theyre called...
jenny_evergreen: (Default)

[personal profile] jenny_evergreen 2006-10-17 12:41 am (UTC)(link)
*flogs LJ for losing my comment*

In short, don't feel guilty for advocating for your kid; you are clearly not the kind of parent that drives educators/therapists (of any sense and/or character) up walls. I was a substitute aide in my local district, so I have some experience of these things. Which makes it suck extra that I know I have nothing in my head that you haven't already thought of, so am relegated to wishing you luck.

Oh, also, blargh for stupid lazy people. :\
phoenixsong: An orange bird with red, orange and yellow wings outstretched, in front of a red heart. (Default)

[personal profile] phoenixsong 2006-10-17 01:16 am (UTC)(link)
Half an hour a week sounds like next to nothing. Do what you need to do now, so Sean learns (if nothing else) how to advocate for himself later.

*hugs*

[identity profile] opalturtle.livejournal.com 2006-10-17 02:41 am (UTC)(link)
One thing I've learned so far in my SLP training is that language learning does rely a lot on vision. They see something, they wonder what it is, we tell them the word. If they don't see it, they don't know it's there to wonder about, so. . .

Have you tried taking things and having him touch them and telling him what they are as he's touching them? That'll only work for nouns, of course, but you might could stretch it to some simple verbs with playacting.

My research project for my Comm Disorder class is Non-Verbal children. I'll see what I can find on Non-Verbal and blind as well. Maybe I can find something that will help you.

[identity profile] phinnia.livejournal.com 2006-10-17 07:16 pm (UTC)(link)
Oh yes. :-) We do that pretty much constantly.
I'd appreciate you looking, and I'm curious to see if there's anything out there. Thanks!

[identity profile] shellynoir.livejournal.com 2006-10-17 04:01 am (UTC)(link)
Parents asking for more therapy for their kids doesn't mean that another child gets less therapy: it means, in the long run, that more therapists get hired.

Fight, woman.

[identity profile] just-carrie.livejournal.com 2006-10-17 04:24 am (UTC)(link)
I say screw that line. Demand more therapy for him.